Rare Disease Day Celebration


Location: Jordan Hall (View on map )

Join the Boler-Parseghian Ceter for Rare and Neglected Diseases for Rare Disease Day Celebration.

Events are free* but RSVP is required by January 15 by emailing sbanchik@nd.edu. *Due to high interest in the hockey game, we may need to set a cap on the number of free tickets.

Friday, February 3, 2017 | 11am-5pm

Research Symposium: Notre Dame faculty and visiting researchers and clinicians

Jordan Hall Galleria

11:00am-12:30pm Lunch and Poster Session

1:00-2:30pm Rare Cancers

3:00-4:00pm Rare Lysosomal Disorders

4:00-5:00pm Other Rare and Neglected Diseases

5:30-7:00pm Dinner and NKH Presentations

Hockey Night in South Bend Fundraiser tickets at: UND.com/BuyTickets (ND, SMC, HCC students free)

7:30pm Hockey Game: Notre Dame vs. Vermont

Saturday, February 4, 2017 | 9am-5pm

Rare Disease Community Event

Jordan Hall 101

9:00-9:15am Welcome, University of Notre Dame Glee Club Rare Disease Fight Song

9:15-9:30am Keynote speaker: The Future of Rare Disease Treatment

9:30-10:30am Emerging Therapies for NKH

10:30-10:45am Coffee Break and Poster Session

10:45-11:45am Update Niemann Pick Type C Disease Clinical Trials

11:45am-12:15pm Caring for Rare Diseases in Primary Care, South Bend and Surrounding Communities

12:15-1:20pm Lunch and Poster Session

1:20-3:15pm Rare Diseases in our Local Community, Patient Narratives

3:15-3:30pm Coffee Break

3:30-4:45pm Rare Diseases in our Local Community, Patient Narratives

4:45pm Closing Remarks

Originally published at science.nd.edu.