Join the Boler-Parseghian Ceter for Rare and Neglected Diseases for Rare Disease Day Celebration.
Events are free* but RSVP is required by January 15 by emailing sbanchik@nd.edu. *Due to high interest in the hockey game, we may need to set a cap on the number of free tickets.
Friday, February 3, 2017 | 11am-5pm
Research Symposium: Notre Dame faculty and visiting researchers and clinicians
Jordan Hall Galleria
11:00am-12:30pm Lunch and Poster Session
1:00-2:30pm Rare Cancers
3:00-4:00pm Rare Lysosomal Disorders
4:00-5:00pm Other Rare and Neglected Diseases
5:30-7:00pm Dinner and NKH Presentations
Hockey Night in South Bend Fundraiser tickets at: UND.com/BuyTickets (ND, SMC, HCC students free)
7:30pm Hockey Game: Notre Dame vs. Vermont
Saturday, February 4, 2017 | 9am-5pm
Rare Disease Community Event
Jordan Hall 101
9:00-9:15am Welcome, University of Notre Dame Glee Club Rare Disease Fight Song
9:15-9:30am Keynote speaker: The Future of Rare Disease Treatment
9:30-10:30am Emerging Therapies for NKH
10:30-10:45am Coffee Break and Poster Session
10:45-11:45am Update Niemann Pick Type C Disease Clinical Trials
11:45am-12:15pm Caring for Rare Diseases in Primary Care, South Bend and Surrounding Communities
12:15-1:20pm Lunch and Poster Session
1:20-3:15pm Rare Diseases in our Local Community, Patient Narratives
3:15-3:30pm Coffee Break
3:30-4:45pm Rare Diseases in our Local Community, Patient Narratives
4:45pm Closing Remarks
Originally published at science.nd.edu.