Saturday, February 4, 2017 | 9am-5pm
Rare Disease Community Event
Jordan Hall 101
9:00-9:15am Welcome, University of Notre Dame Glee Club Rare Disease Fight Song
9:15-9:30am Keynote speaker: The Future of Rare Disease Treatment
9:30-10:30am Emerging Therapies for NKH
10:30-10:45am Coffee Break and Poster Session
10:45-11:45am Update Niemann Pick Type C Disease Clinical Trials
11:45am-12:15pm Caring for Rare Diseases in Primary Care, South Bend and Surrounding Communities
12:15-1:20pm Lunch and Poster Session
1:20-3:15pm Rare Diseases in our Local Community Patient Narratives
3:15-3:30pm Coffee Break
3:30-4:45pm Rare Diseases in our Local Community Patient Narratives
4:45pm Closing Remarks
Originally published at science.nd.edu.